Red Cliff Recreation Area
Getting dirty at the Virgin River
Kayaking at SandHollow Reservoir
He celebrated his 10th birthday by attending the Lego exhibit and having an outdoor movie with family friends. He said it was one of the best birthday's ever. Brady loves all things Lego. He has so many sets that he has acquired over the years and he takes them apart and rebuilds them over and over again. Visiting the Lego Exhibit opened his eyes to all the different things he could do with Lego.
There was a large area blocked off with Lego covering the floor where kids could come and create. Addison and Brady spent almost 2 hours creating.
He requested mini-cupcakes for his birthday treat because he could fit one into his mouth in one bite.
A Sunday outing to a local park.
Easter Sunday
Since his surgery he has been able to gain 2-3 lbs. That may not seem like a lot for your average child, but he is not average. Brady has been about 55 lbs for the past year or more and could not gain weight even though he eats so much food. His heart has to work so hard to keep going that he burns extra calories. His surgery has been able to help his heart not have to work as hard.
Brady had his follow-up appointment with his cardiologist on Tuesday this past week where an echo revealed his repair is holding and nothing remarkable on his EKG. Brady had his pacemaker put in at age 4 and ever since then he has paced between 20 and 25% of the time. That means his pacemaker would shock his heart every 1 in 5 or 1 in 4 heartbeats. Most of the pacing was done during the nighttime hours when his heart rate would drop below 60 bmp. When his pacemaker was checked on Tuesday he was only pacing 9% of the time. That is a significant drop in use. A great sign that his heart is doing better. Brady also asked the doctor during this appointment if he could come off his nighttime oxygen. In all of Brady's 10 years of life he has only had 1 year where he didn't sleep with oxygen. The doctor felt like he could try for a month without his oxygen. If he felt more tired or developed any other symptoms then he would need to go back on. We will see what happens over the next month. For the time being Brady is getting use to falling asleep without the hum of the oxygen concentrator.
We are beyond grateful for how well Brady is doing. In the last month Payton's body seems to be falling apart and has required several doctor's appointments, an MRI on her leg and physical therapy appointments. Both girls had a bad virus in April. Addison will be getting her tonsils out this Thursday. Brady has been the healthy one and he isn't shy about telling his sisters this. He has really gotten back to living a very normal life. His heart is far from perfect as he runs out of energy pretty quick and is out of breath after little physical activity, but he doesn't let this stop him.
Thank you for your continued support and prayers. I know this has made all the difference.
Pinewood Derby - The Mystery Machine
